Working together on this
Clubfoot Forward is one adult with the condition, a large set of sourced pages, and a free app. That is the whole operation. If you run a clinic, a program or a brace company, or you research this condition, there are a few specific things worth doing together. This page says what they are and what I can realistically offer in return.
What this is, before you spend time on it
This is a patient-led site, not a clinical one. I hold no medical qualification, every medical claim here is sourced to published literature, and nothing on the site substitutes for the people actually treating a foot. Knowing that up front saves everyone a conversation.
What the site does have is reach among the people you are trying to help, and a body of material written from the inside of the condition rather than about it. What it does not have is a budget or a team.
The main one
Getting the app to families
The app records treatment as it happens: each cast, the tenotomy, brace hours, and a summary a family can hand to their provider. It is free, it works offline, and it asks nothing of your IT or legal teams because the data stays on the family’s phone.
The useful collaboration is distribution. A card in the box with a brace, a line on a discharge sheet, a mention at the first casting appointment. Families are the ones who need it, and you are the ones who see them at the right moment.
I will not claim it improves adherence or outcomes, because nobody has measured that yet. What I can offer instead is a three month trial with an honest answer at the end, including an answer of no difference if that is what it shows.
Other things worth doing
Clinical review
The pages here are sourced carefully and still written by a patient. If you treat this condition and are willing to read a page in your area and tell me where it is wrong, thin or out of date, that is the single most valuable thing anyone can give the site. Reviewers are credited unless you would rather not be.
Research
Adult clubfoot is thinly documented, which is the reason this site exists in the shape it does. If you are running something that needs adults with treated clubfoot to hear about it, or you want to discuss what the site’s own material can and cannot support, that is worth a conversation.
Corrections
If something here is wrong, tell me and I will fix it. That is not really collaboration, it is just the deal, but it is the most common reason people write.
Your own decades
If you are an adult with clubfoot, your experience of the last twenty or forty years is the material that is hardest to find anywhere. Nothing gets published with your name on it unless you say so.
Advertising, and what is not for sale
I am not opposed to money. The site can carry advertising and I am open to talking about it. If you want to buy a placement, say so and we can work out what it looks like and what it costs. An ad that a reader can see is an ad is an honest thing to run.
What is not for sale is the writing. Nobody buys a recommendation, a place in a comparison, or the sentence that calls their product the better one. Those follow the evidence and what the condition actually needs, and that does not change for a fee.
So the split is simple. Paying to be seen, yes. Paying to be preferred, no. Where a link earns the site a commission, the page says so.
Separately, I will not describe a product as clinically better than another without published evidence behind it, and I will not give medical advice about any individual foot, including in reply to an email.
Getting in touch
What to put in the message
Tell me who you are, what you have in mind, and what the first small step would look like. If it is about the app, say roughly how many families you see and in what setting, because that changes what is worth proposing.
I read everything. Replies to collaboration messages are usually quick. If your question is about your own clubfoot or your child’s, the contact page is the better route and is honest about what email can and cannot answer.